Husband told brain cancer is terminal and already at Stage 4?

2011
01.11

Liver Spots Treatment

Question by babsho60: Husband told brain cancer is terminal and already at Stage 4?
Your comment: My husband suddenly became very dizzy four months ago (May, 2010), began losing weight and feeling terrible. Dr. diagnosed him as having vertigo, but he was still losing weight. Finally, thank God, we saw the Dr.’s nurse-practicioner. She ordered x-rays and ct. scan which found spots on his lung. From there we went to a lung specialist who ordered a lung biopsy for 20 July. He had to go into hospital for severe impaction so that biopsy was postponed until first week of August. Since then it has been a roller-coaster ride of Oncologist visits, and then a Radiologist. He is to begin radiation treatments Mon. Aug. 30. He must have had this for quite some time for it has spread to his brain. He has both small cell and non-small cell cancer. I blame myself for not being more pro-active earlier when he was first dizzy in May and demanding x-rays. My husband will have a little more time because of the radiation treatments (10). The Oncologist did not even suggest chemo because the cancer has already attacked his sternum, lungs and liver. Right now I am dealing with anger issues against myself and his regular doctor who was so quick to dismiss it as just another case of vertigo. We even went to an ear, nose and throat specialist who said the same thing. Please give me the tools to help me deal with this and be an even better care-giver. We have been married 46 years and I sure wanted to have him around for quite a few more

Best answer:

Answer by tired person
This is so sad and unfair. Don’t blame yourself too much… you’re not psychic. You were probably just good at hoping for the best. That’s a quality to love in a person. The doctor should have definitely done better, but that part has always been out of your control. You two have been married longer than I’ve been alive so I don’t think I can wrap my head around it, even. I would say try to forget about anger, or put the anger off for later, because it will do nothing for you, you don’t need another poison. Make the time you do have all about each other.

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10 Responses to “Husband told brain cancer is terminal and already at Stage 4?”

  1. parsnipianna says:

    I am sorry that both of you are facing this . All I can offer are some possible resources.

    Here is a link to online support for terminally ill people and their caregivers.
    http://www.terminalillness.co.uk/online-support.html

    You can learn about hospice care here:
    http://health.msn.com/health-topics/caregiving/articlepage.aspx?cp-documentid=100196127

    To find hospice care in your community, start here:
    http://www.hospicedirectory.org/cm/about/state_hospice

    Do you know of Randy Pausch? you may find something of value in his “Last Lecture” (not religious stuff.) Read about him here;
    http://en.wikipedia.org/wiki/Randy_Pausch

    Watch the lecture here:
    http://www.youtube.com/watch?v=ji5_MqicxSo

  2. ƦєdAиgєℓ says:

    Doctors misdiagnose. My grandfather was misdiagnosed with constipation and died from bowel cancer. Back then i didn’t know anything about alternative treatments or the fact that cancer is a metabolic disease. A metabolic disease is caused by a lack of an enzyme and/or vitamin. This is why there are successes in enzyme and nutrition therapy. This is also why tribal cultures like the Hunza’s, the Abkhasians and the Azerbaijani never have cancer as their diet is high in enzymes (only found in raw foods) and essential nutrients. Emerging evidence shows cancer to be a metabolic disease and vitamin D deficiency causes and accelerates development of cancer>>>

    http://www.ncbi.nlm.nih.gov/pubmed/20181022
    http://www.ncbi.nlm.nih.gov/pubmed/17578830

    Brain cancer case studies>>>
    http://www.gerson.org/case/case0.php?case=9

    Gerson Therapy>>>
    http://www.healingdaily.com/conditions/Gerson-therapy.htm

    Vitamin D>>>
    http://road-to-health.com/catalog/quality-nutrition-products/vitamin-d-product-options/vitamin-d-protects-against-cancer

  3. Tarkarri says:

    With many (most?) cancers there are no obvious symptoms until it is well advanced.

    It is unlikely that any delay since May has had any real influence on the outcome as this has probably been developing for years.

    Stop wasting precious time on the blame game and being angry about what has already happenned. We all have much better vision with hindsight.

    Make the most of whatever time you have left and help your husband through his radiation treatment, hopefully it will have great results.

  4. Denisedds says:

    Whatever kind of cancer he has it is not brain cancer as there is no stage 4 and it does not spread to the lungs and the liver. It sounds like lung cancers. There is nothing to feel guilty about by the time he started to feel dizzy it was already too late. There was nothing you could do. I’m sure you are a fine caregiver, but if you feel overwhelmed let his oncologist know and he or she can refer you to counseling and/or support groups that may help. They can also arrange to some help for you too if needed.

  5. Scott S says:

    I’m sorry both you are going through this. There is no way around the terrible reality that is facing you both.

    At this point, you need to see the best specialist you can get him to. Get on-line, research the type of cancer, and find some support groups that have forums where you can ask questions. Ask for opinions concerning specialists a reasonable distance from you.

    I am a firm believer in clinical trials. This is where ALL medicines first are offered to patients. A top-notch specialist will probably be heavily involved in clinical trials himself. These can offer some hope.

    I was in a research study that evaluated support groups. The only reason I bring this up was a husband and wife who came. The husband had a brain tumor. They said he was given three months. He got on a clinical trial and was alive and up and about a year later. This gave him months more. You now know that nine extra months of good health are priceless! It is worth striving for.

    Seeing a specialist need not be expensive for just a consult. He can review the records and recommend trials or another course of action.

    Be open to alternative treatments. I’ve been on high dose EGCG pills (4 grams a day) for quite some time to treat my leukemia. I have lived with my cancer for 12 years. Expected survival is about five years. I also take 50-100 mg of zinc a day; most people get too much copper in their diet. I’m also a big believer in vitamin D. Everyone pretty much agrees that 400 IU in multi-vitamins is way too low.

    Your husband’s situation is not going to be cured by natural ingredients. Ask the doc; I think doing something is better that nothing, while you’re waiting. During treatments themselves, some supplements need to be adjusted.

    Great strides are now being made in cancer research. Compared to even 10 years ago, people are living longer. There is hope out there!!! Is Tarceva a possibility? My mother-in-law saw some success there.

    I don’t know if you have faith, but that can be important at times like this. Prayer works, especially when people pray for you. I don’t know how it works, maybe it helps the body fight a bit harder. But it works.

    Please, please, please don’t blame yourself, or even the doctor. They play the percentages. The other causes were more likely than cancer.

    If and when the time comes, hospice can be quite helpful.

    I know the pain that you are experiencing. I’m the patient; sometimes I think it’s harder to sit and watch, feeling helpless.

    I’ve done four clinical trials myself. I will probably be killed by my cancer, but I’ve fought the good fight, lived long enough to retire from my job and set my wife up financially, which is a relief.

    Cancer sucks, and it needs to be destroyed as quickly as possible.

    I wish I could offer you more. God’s blessings on you both.

  6. mirador1014 says:

    I am so sorry to hear of your husband’s cancer. First of all, God bless you, your husband, and your family.

    It’s totally expected that you feel angry at yourself and hold yourself responsible, even though the reality is that his illness is nobody’s fault. It seems clear from how far the cancer has spread that it must have been present and spreading for a long time, maybe years, without causing any symptoms.

    I can appreciate the anger you feel at his doctor for not doing lots more tests at your husband’s first visit. My family and I felt the same way a few years ago when this happened to my younger brother. He saw his doctor several times over about a year with various symptoms, which the doctor never connected to being the kidney cancer it really was.

    My brother was 48 the day he was brought to the ER in sudden horrific pain and diagnosed with terminal cancer. Earlier that same day, he’d found out that his (young) wife was pregnant with his first child.

    My brother was beside himself with anger at himself and at his doctor. He was given 6 months to live, but with aggressive treatments he survived 2 years to the day from his diagnosis. During that time he was able to come to terms with his fate and to accept the reality that his cancer had been growing for a long time and only made itself known when it was much too late to save his life.

    When I read your question it reminded me so much of the feelings of fear, anger, and helplessness we all had during that difficult time. It was one of the most overwhelming times in all of our lives. It will be a very difficult journey but for your husband’s sake you will travel it with courage. You will be an excellent care-giver for him, because it’s clear your love for him is so deep. We take that vow to love “in sickness and in health,” and your love and God’s love will help your husband to bear the burden he’s been given. I will pray for health in body and spirit for both of you.

  7. Ntjttal says:

    I am so sorry to hear about this. I really don’t know what to say except that you shouldn’t blame yourself. People get dizzy all the time! How could you have had any way of knowing that this was different?
    I understand the anger against the doctor; I have had loved ones come close to death because the doctor so quickly dismissed our concern. However, at the end of the day, I’m sure the doctor wonders if he has done the right thing, just like we do. They have so many patients and there are so many things that could go wrong with the body that sometimes you just have to guess.

    It is really hard to see someone suffer from a terminal illness. My advice would be to be there for him, and be the loving wife he needs.

  8. Lulu Stete says:

    I am so sorry this is happening to you. It is terrible when you are dealing with something like that. Dont blame yourself. Easier said then done, I know. My son had cancer. Tumor in his belly was so big it crashed into his main vein supplying stomach and he bled internally. He was only 5 weeks when I took him to hospital and he was really pale. He was pale before as well, few days after he was born. I called a midwife, told her he is very sleepy and pale and she said:” Well, whats wrong with sleepy baby?”.
    I was told he could have died any second we were just lucky, I suppose.
    Of course blamed myself.. I blamed myself all the time..I should have known..But now..you cant..You have to go through that stage as you will blame someone else as well. People need someone to blame, it makes better sense after. That is what our logic brain does to us.
    I wish you all the strength in the world and I will be thinking of you. The pain will ease with the time..it will all get better, trust me.
    Love Lenka

  9. redhotsillypepper says:

    When lung cancer metastasizes to the brain, it is always terminal. Finding out sooner would not have had a significant effect on his prognosis. By the time the dizziness started, even the most brilliant doctor in the world would not have been able to save your husband. You don’t have to feel guilty, it sounds to me like you are doing an excellent job and that your husband is fortunate to have such a loving wife and care-giver. Good luck and take it easy on yourself.

  10. april says:

    It would help if we knew who you copied this from…and you didn’t copy and paste even the entire question…

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